Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface


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About this product Description Description. Chronicles the emergence and transformation of hemophilia community.

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Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface [Susan Resnik] on linawycatuzy.gq *FREE* shipping on . Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface by Susan Resnik () [Susan Resnik] on.

This book sets the story within our national political landscape - where the disease is also a social, psychological, and economic experience. She lives in Del Mar, California.

Publication Data Place of Publication. Show more Show less. For thousands of years boys known as "bleeders" faced an early, painful death from hemophilia.

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Will YOU help us to remember our lost by supporting the Committee of Ten Thousand's effort to establish a national memorial? If the job of the AIDS Oversight Committee was to stimulate activity, then the committee could count its work a success. The nation would have to decide how much to spend on the promise of cure through basic science and how much to spend on care through public health and clinical measures. One involved a large-scale study of the transmission of HIV through the blood supply in the early s, and the other surveyed the AIDS research programs of what was known before as the Alcohol, Drug Abuse, and Mental Health Administration. For all of the hopes of the AIDS Oversight Committee about the many things the study might accomplish, it was similar to many other evaluations of the government's research programs that the IOM had undertaken over the years, and it was likely to produce the same sort of recommendations. The discussion took the form of a workshop in response to a congressionally mandated request for information on this topic and led to a formal Roundtable report to the Public Health Service. The Journal of Infectious Diseases.

Dubbed "the Royal Disease" because of its identification with Queen Victoria, the world's most renowned carrier, hemophilia is a genetic disease whose sufferers had little recourse until the mid-twentieth century. In the first book to chronicle the emergence and transformation of the hemophilia community, Susan Resnik sets her story within our national political landscape—where the disease is also a social, psychological, and economic experience.

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Blood Saga includes many players and domains: At that time the "miracle treatment" of freeze-dried pooled plasma blood products enabled men with hemophilia to lead full, normal lives. But rather than collapsing, this community refocused its priorities, extended its reach, and helped shape blood safety policies to prevent further tragedy. The hemophilia community includes people from every socioeconomic and ethnic group, and Resnik's narrative and use of oral histories never lose touch with those affected by the disease.

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Her extensive informant interviewing allows much of this social history to be told by participants on all levels: Gene insertion therapy now holds the promise of a cure for hemophilia in the near future.